小孩快4岁,医生诊断为自闭症,发育落后,要打半年营养针促进脑发育。营养针有副作用吗?

海喱山


自闭症属于孤独谱系障碍疾病,是儿童大脑神经先天发育缺陷所致,伴有社会功能下降,智能发育的落后,治疗主要以康复性治疗为主,营养针剂对自闭症的缓解及治疗没有明确的医学证据。



自闭症的常见表现

如果患儿有自闭症,一般在出生后的5、6个月时会发现他们与母亲或家人缺乏亲密感,哺乳期婴儿与妈妈缺少依恋的关系,换句话说孩子除了家人之外其他陌生人在抱患儿时,患儿也少有明显的恐惧、哭闹表现。到1周岁后正常儿童可以简单叫爸爸、妈妈,或者能用手势或眼神简单表达自己的意愿,而自闭症患儿在言语表达方面有障碍,不会用语言表达自己的意愿,对简单的代词无法识别含义,例如无法分清你、我、他等;患儿有语言障碍的同时也带给他们社交方面的问题,患儿因缺乏沟通而只能自娱自乐,逐渐变得行为刻板,缺乏想象力;自闭症的患儿在幼儿园不愿意参加团体活动,不能融入到与其他小朋友的游戏之中,难于看管。除此之外,家人会发现患儿在玩玩具时只是简单的摆弄,不太喜欢想象,平时喜欢关注旋转的物体等。



自闭症患儿很多因大脑功能缺陷而在后天出现精神病性症状,如幻觉或妄想表现,必要时我们建议患儿服用抗精神病药物控制精神症状,但患儿的语言交流障碍、刻板行为以及兴趣范围的狭窄还是需要在专业的康复机构通过康复训练加以纠正,由于先天功能受损,大脑功能遭受不可逆损伤,营养针可能会营养脑神经,但不会改变已形成的缺陷,自闭症患儿需要后天康复治疗恢复功能,但恢复程度因人而异,不建议注射营养针治疗自闭症。


精神知多少


首先要强调无论是自闭症,还是其他疾病营养针都不需要打!!!

在门诊遇到很多来各地前来就诊的宝宝,这些宝宝大都是因为自闭症、脑瘫、发育落后、早产儿、肌张力等的问题,也有一些误诊为以上问题的宝宝,而这些宝宝几乎都接受过注射或是口服营养类等药物的过度治疗。

目前很多地方会给宝宝使用一些,营养神经的药物,如鼠神经生长因子、神经节苷酯、脑蛋白水解物等等,这些药物其实在国外很早就禁止使用了,协和医院也不用这些药,因为其无法穿透血脑屏障,也就说根本无法到达脑子里的,是不能营养神经的。

这些药物本质属于无功无过的药物,也不会有什么副作用,但对于已知的发育迟缓、脑瘫是起不到治疗作用的,甚至是会延误孩子的病情的,从而延误最佳的治疗时间,所以不建议用,确实很多地方仍然在用,其实是劳民伤财。

自闭症、脑瘫、发育落后、早产儿、肌张力等疾病的问题。唯一的治疗方式就是进行要及时有效对应的康复治疗,如大运动、精细动作、社会交往、心理治疗等等。且需要跟踪治疗,也就是说根据宝宝每次康复的情况,再制定下一次的康复计划。直到宝宝最大程度的恢复和正常宝宝一样。

自闭症是一种社会交往障碍的疾病,一般6月龄时会有自闭倾向,越早干预预后越好,宝宝现在快4岁了,干预已经算很晚了,所以预后会差一点,但是家长也要积极的配合医生的康复治疗,以及家庭引导,训练宝宝的独立和自理生活能力,有些自闭症孩子会过分依赖自己的父母,情感上和生活上的注意力都在父母身上。父母应该跟孩子悉心跟他们沟通。这样慢慢建立他们的认知和独立能力,尽最大程度不影响宝宝以后的生活和学习。

自闭症、脑瘫、发育落后、早产儿、肌张力等的问题,由于诊断困难,所以很容易被误诊,如果家长条件允许可以到协和医院找我面诊,避免误诊和过度治疗。一般我会在周五的下午在协和出诊,但是家长普遍反映挂不到号,为了节省财力、人力,建议直接到北京宝秀兰儿优中心,(我一般会在周二、周四、周六上午出诊,打400-0066-650咨询挂号即可),如遇不便也可先咨询进行视频看诊,明确问题后再考虑是否需要来面诊。有以上问题的宝宝,家长应引起重视。


儿科医生鲍秀兰


首先要明确自闭症和发育迟缓的关系,两者并不是两种不同的疾病。我们常说的发育迟缓是一个大类,泛指孩子在某一个或者多个领域明显偏离了正常的发育规矩,明显落后于同龄孩子的平均发育成长水平。比如有的孩子过于矮小瘦弱,有的孩子语言能力很弱,有的孩子大运动能力很差,有的孩子社交能力明显较弱等等,这些都是发育迟缓。而每一种发育迟缓的原因可能有一种或者多种,而自闭症是常见的社交能力发育迟缓,脑神经发育迟缓的原因,当然,有些孩子语言和智力发育迟缓也是因为自闭症。

其次,自闭症的确是因为脑神经发育迟缓,但这种发育迟缓往往并不是因为营养的缺失,虽然外界的营养摄入可以为脑神经的发育提供必要的条件,但依靠这种摄入要从根本上解决自闭症,目前还没有这样的论调。

有一些ASD的孩子会存在明显的挑食问题,医生在诊断自闭症的时候可能会根据孩子是否存在挑食给予一些促进食欲,促进消化吸收的药物,也可能会给予一些提高孩子智力的药剂,但这些都只是辅助的手段,其根部不是直接作用于ASD的治疗,而是为了促进孩子的正常生长发育,是否接受这样的药物辅助治疗,我觉得家长需要从孩子的实际情况出发,理性的选择,如果孩子平时的饮食正常,也不明显挑食,身体的发育轨迹也正常,那么我是觉得完全没有必要选择这类的营养针,针剂提供的营养物质完全可以通过日常合理的饮食摄入满足。而任何药剂,哪怕只是增加营养的,终究比不上天然的通过饮食摄入的方式来得安全,自然。

当然,如果孩子存在明显的挑食问题,本身就存在营养不良的情况,那么也是可以考虑接受辅助治疗的。不过作为家长还是要多想想办法,让孩子多吃,吃好。


爱陪娃的熊叔


这是哪里的医生!?

千万不要相信这样的鬼话。如果接受这样的治疗,你浪费的不仅仅是金钱,更是孩子康复的最佳时间!

如果真的是自闭症,所谓的营养针没有任何帮助作用。

目前没有任何人了解自闭症的形成原因。虽然大家一致认为自闭症是先天的,和后天带养无关,但是没有任何数据可以证明是先天原因。

病因都不了解,怎么对症下药?

自闭症的特征网络都可以查到,大概是这几个特征:动作刻板重复、缺乏目光对视、语言能力弱、没有社交行为、对外界刺激没反应等等。

目前唯一确定有效的治疗自闭症儿童的手段,就是强化训练,康复治疗。

建议家长多研究了解自闭症,寻求真正的专业机构指导自己怎么训练孩子,千万不要走弯路。

快四岁的孩子,加强训练,只要方法得当,康复效果应该不会太差。

孩子大了,康复效果会越来越弱。

加油(ง •̀_•́)ง


妈咪老师


这个打营养针促进脑发育还是第一次听说,自闭症是前天发育性的问题,后天只能通过辅助康复治疗,至于打什么真促进脑发育,似乎跟自闭症的康复治疗没有什么作用。

社会上对自闭症有一些偏见的理论

  • 偏见一、自闭症会传染——自闭症是一种先天性的脑神经发育障碍,从而导致患儿具有功能性的发展障碍,比如语言交流障碍,社会交往障碍,但这些症状是不会传染的

  • 偏见二、某一领域具有超长的天赋——受影视剧以及媒体的影响,很多人以为自闭症的孩子会在某一方面有超常的能力,比如记忆、绘画、音乐等。事实上,美国疾病防控中心在2009年的调查显示,41%的自闭症儿童在治理方面有缺陷,智商在70分以下。59%的儿童边缘智商71-85分或高智商85分以上,但很少有天才能力。
  • 偏见三、冰箱妈妈理论——有人认为家长的养育方式,主要是妈妈对孩子的冷淡,才导致孩子患有自闭症,所以把他们的妈妈称为冰箱妈妈。实际上教育方法不会导致自闭症,只会改变行为。
  • 偏见四、他们没有感情不愿说话——因为我们平时见到的自闭儿大多面无表情,不理不睬,就认为他们没有感情。实际上每个自闭儿都不一样,病情较重的孩子与他们建立友谊是一件困难的事情,但绝大多数自闭儿都可以刻其他人建立很好的感情

孩子已经4岁诊断为自闭症,那么要有计划的安排孩子的康复训练了,争取在孩子最好的时间段,给予有针对性的训练,让孩子得到更多的学习,有利于今后的学习和生活。


泡泡育乐园


Patient Report: Autism Spectrum Disorder Treated With Camel Milk

Christina M. Adams, MFAcorresponding author

克里斯蒂娜·M·亚当斯,MFA通讯作家

Abstract

This patient report is about my son, who was diagnosed with autism spectrum disorder (ASD) at 3 years of age, and the effects I observed when he began drinking camel milk daily. Beginning at age 9, he drank one half cup of raw camel milk a day and experienced overnight an improvement in his symptoms. His continued regular consumption of camel milk was associated with sustained symptom improvements for 6 consecutive years (2007-2013). This patient report is a road map of my navigations, consultations with experts and autism care providers, and the apparent effect of camel milk on autism spectrum disorder (ASD).

Key Words: Camel milk, autism spectrum disorder, patient report

摘要

这份病人报告是关于我的儿子的,他在3岁时被诊断为自闭症谱系障碍(ASD),以及我观察到的他开始每天喝骆驼奶的影响。从9岁开始,他每天喝半杯生骆驼奶,一夜之间症状有所改善。他连续6年(2007-2013)持续饮用骆驼奶与症状改善相关。这份病人报告是我的导航图,是我与专家和自闭症护理提供者的咨询,以及骆驼奶对自闭症谱系障碍(ASD)的明显影响。

关键词:骆驼奶,自闭症谱系障碍,患者报告

INTRODUCTION

As an infant, my son appeared normal and met the generally accepted growth and development milestones. He was calm and attentive, smiled at 6 weeks, laughed, and could focus on books and toys. He was affectionate and bonded with his parents and always showed appropriate separation anxiety. He spoke two clear words at 9 months and walked on his first birthday. However, beginning at 6 months, he started biting people and never pointed to objects. He also had very red cheeks, constipation, prolonged startle reflex, and infant torticollis.

介绍

我的儿子婴儿期间看起来很正常,符合人们普遍接受的生长发育阶段。他平静而专注,在6周时微笑,大笑,可以专注于书本和玩具。他和父母感情深厚,关系密切,表现出适当的分离焦虑。九个月大的时候,他就能清晰地说出两个字,一岁生日的时候,他还能走路。然而,从6个月大开始,他就开始咬人,而且从不指向物体。他也有非常红的脸颊,便秘,长期惊吓反射,婴儿斜颈。

EARLY AUTISM

Just before he turned 3 years old, my son was diagnosed with autism. He had loss of language and attention at 15 to 18 months, the appearance of hyperactivity, sensitivity to noise, and fixation on objects and water. He had difficulty interacting with others, was still biting and engaging in aggressive behavior, and had been dismissed from two preschools. Like many ASD children, he was found to have food intolerances and allergies, skin conditions, auditory processing delay, expressive/receptive language delay, constipation, and an intermittent tic disorder.

早期自闭症

就在我儿子3岁之前,他被诊断出患有自闭症。他在15到18个月的时候失去了语言能力和注意力,表现为极度活跃,对噪音敏感,对物体和水很执着。他很难与他人交流,仍然爱咬人,并有攻击性行为,曾被两所幼儿园开除。和许多自闭症儿童一样,他被发现有食物不耐受和过敏、皮肤状况、听觉处理延迟、表达/接受语言延迟、便秘和间歇性抽动障碍。

After the diagnosis and continuing for years, he received a battery of tests including complete physical exams, electroencephalograms, neurological and sensory evaluations, auditory testing, and stool and urine testing for heavy metals, amino acids, organic acids, intestinal parasites, and Candida. Laboratory tests were ordered, including complete blood counts, metabolic profiles, and tests for immune-globulins and inflammatory markers. He also received regular vaccination through 15 months.

在确诊并持续数年之后,他接受了一系列测试,包括完整的体检、脑电图、神经和感觉评估、听觉测试,以及粪便和尿液中重金属、氨基酸、有机酸、肠道寄生虫和念珠菌的测试。要求进行实验室检测,包括全血计数、代谢情况、免疫球蛋白和炎症标志物检测。他还接受了15个月的定期疫苗接种。

My son was enrolled in 35 to 40 hours per week of intensive one-on-one therapy at our home in a clinically supervised program of applied behavioral analysis (ABA). He also had 3 hours per week of individual speech therapy and 2 hours per week of occupational therapy. His diet was gluten- and casein-free for 2 years with limited intake of sugar, yeast, and nuts. His medications included various antiviral (famciclovir, valaciclovir) and antifungal medications (nystatin, ketoconazole, amphotericin-B), selective serotonin reuptake inhibitors (SSRIs; citalopram, escitalopram) and blood pressure–reducing medication (guanfacine) to decrease hyperactivity and aggression. These medications, used daily and mostly added one at a time for careful observation, seemed to be beneficial. The combination of his treatments produced positive benefits that were confirmed in twice-monthly ABA clinic meetings, daily ABA data gathering, and pediatric ASD specialist office visits. As many children make limited gains with similar treatments, this progress earned my son a reputation as a “responder” in autism parlance.

我的儿子参加了一个应用行为分析(ABA)的临床监督项目,每周在家接受35到40个小时的强化一对一治疗。他每周还有3小时的个别语言治疗和2小时的职业治疗。他的饮食中有两年不含麸质和酪蛋白,糖、酵母和坚果的摄入量有限。他的药物包括各种抗病毒药物(泛昔洛韦,伐昔洛韦)和抗真菌药物(尼司他汀,酮康唑,两性霉素b),选择性血清素再吸收抑制剂(SSRIs;西酞普兰,艾司西酞普兰)和降压药(胍法辛)来减少多动症和攻击性。这些药物,每天使用,大多一次增加一个仔细观察,似乎是有益的。他的治疗组合产生了积极的益处,这在每月两次的ABA临床会议、每天ABA数据收集和儿科ASD专家办公室访问中得到了证实。由于许多孩子通过类似的治疗只能获得有限的效果,这一进步为我的儿子赢得了孤独症术语中“反应者”的名声。

By age 5, this hard-working child had demonstrated significant improvement, passed the kindergarten readiness test, and began attending a public school with a shadow aide. ABA therapy dropped to 3 hours per week. He later attended a school for children with attention deficit/hyperactivity disorder with weekly social skill sessions and participated in lessons and activities outside our home with and without an aide. His schoolwork was at or above grade level with the anticipated exception of handwriting. Although he needed intermittent supervision to stay on task, his cognitive scores were all above average. He continued to struggle with prolonged eye contact, and his conversations, while inquisitive and mutually engaging, were sometimes inattentive and monologue-style. Nevertheless, he was bright and friendly and enjoyed social contact and outings with peers and friends. Interestingly, when he ate dairy products around age 7, even pizza with the cheese removed at a baseball game, he would develop many symptoms. Hand-flapping, circle and toe walking, inattention, and constipation would result within hours, and he once complained, “It feels like there's dirt in my brain.” Though he had returned to gluten 2 years after his ASD diagnosis with no outward effects, he avoided dairy products and kept his sugar intake low.

到5岁的时候,这个勤奋的孩子表现出了显著的进步,通过了幼儿园预备考试,并开始在一个影子助手的帮助下进入公立学校。ABA疗法减少到每周3小时。后来,他参加了一所针对注意力缺陷/多动障碍儿童的学校,参加了每周一次的社交技能课程,并在有或没有助手的情况下参加课外课程和活动。他的学业成绩在年级或以上,除了预料中的书法以外。虽然他需要间歇性的监督才能完成任务,但他的认知成绩都高于平均水平。他继续与长时间的目光接触作斗争,他的谈话虽然好奇而又相互吸引,但有时是漫不经心的、独白式的。尽管如此,他还是很开朗、友好,喜欢与同龄人和朋友进行社交和郊游。有趣的是,当他在7岁左右吃乳制品时,即使是在棒球比赛中去掉奶酪的披萨,他也会出现许多症状。拍手、绕圈、用脚趾走路、注意力不集中,几小时内就会便秘。虽然他在被诊断为自闭症谱系障碍两年后又开始食用麸质,但他没有食用奶制品,也没有摄入过多的糖。

Editors' Remarks

In this patient report, a mother shares her observations and assessment of the effectiveness and safety of camel's milk for her autistic son. We believe this patient report helps to communicate her experience of the care her family received. It will also inform clinicians about how patients experience the care they provide. We support reporting the patient's perspective.

在这份病人报告中,一位母亲分享了她对骆驼奶对她患有自闭症的儿子的有效性和安全性的观察和评估。我们相信这个病人的报告有助于传达她的经验,她的家人得到的照顾。它也将告知临床医生病人如何体验他们所提供的护理。我们支持报告病人的观点。

Despite this remarkable progress, at age 9, my son began to have significant behavioral issues: sudden hyperactivity, loss of attention, distracted language, and loss of self-regulation. These symptoms were exacerbated when he had not eaten for 2 to 3 hours. Visits to his treating ASD physicians, titration of existing medications, and additional dietary measures did not seem to help. A trial of SSRI (fluoxetine) made him dazed and anxious and seemed to worsen the behavioral issues. It was becoming difficult to prompt and cope with his actions as discipline and safety techniques were no longer effective. As his mother, I was increasingly taxed and my outlook was becoming ominous.

尽管有了这些显著的进步,在9岁的时候,我的儿子开始出现严重的行为问题:突然的多动症、注意力不集中、语言不集中、自我调节能力下降。当他2到3小时没有进食时,这些症状会加重。他去看治疗自闭症谱系障碍的医生,对现有药物进行滴定,并采取额外的饮食措施,似乎都没有效果。一次SSRI(氟西汀)的试验使他头昏眼花,焦虑不安,似乎使行为问题恶化。由于纪律和安全措施不再有效,他的行动越来越难以及时处理。作为他的母亲,我的税负越来越重,我的前景也变得不妙。

TREATMENT WITH CAMEL MILK

On October 10, 2007, 2 weeks before my son's tenth birthday, he drank his first half cup (4 oz) of thawed raw unheated camel milk. I chose this course because I had spent the previous 2 years studying camel milk and consulting people familiar with its use. In fall 2005, a camel farmer spoke to me about the use of camel milk in Middle Eastern hospitals for premature babies due to its reputed nonallergenic and nutrient-rich qualities. That information led me to theorize the milk might strengthen my son's immune system and thus improve his functioning and also serve as an alternative dairy product. I reviewed the scant literature that evening and over the next few months. In 2006, I found Dr Reuven Yagil's brief 2005 report on several children with ASD responding positively to camel milk. I then consulted Israeli-American scientist Amnon Gonenne, PhD, on his theory that camel milk may act as an anti-inflammatory agent and might help my son. Reassured by anecdotal reports and conversations with healthcare providers and camel milk producers, I concluded the risk of trying camel milk was minimal. One of my son's physicians signed a letter authorizing his need to consume camel milk. I then arranged to receive bottles of raw frozen camel milk from Israel. The camel milk was tested for the presence of bacteria prior to freezing, stored at −20° C, and then shipped by air to me.

2007年10月10日,就在我儿子十岁生日的前两周,他第一次喝下了半杯(4盎司)解冻但未加热的生骆驼奶。我选择了这个治疗,因为我在过去的两年里一直在研究骆驼奶,并咨询熟悉它用途的人。2005年秋天,一位养骆驼的农民告诉我,中东地区的医院使用骆驼奶喂养早产儿,因为骆驼奶被认为不会引起过敏,而且营养丰富。这些信息让我想到,这种牛奶可能会增强我儿子的免疫系统,从而改善他的功能,还可以作为一种替代奶制品。那天晚上和以后的几个月里,我查阅了一些零星的文献。2006年,我发现Reuven Yagil博士2005年关于几个ASD患儿对骆驼奶有积极反应的简短报告。然后我咨询了以色列-美国科学家Amnon Gonenne博士,他的理论是骆驼奶可能有消炎的作用,可能对我儿子有帮助。我从坊间传闻以及与医疗服务提供商和骆驼奶生产商的对话中得到了安慰,我得出结论:喝骆驼奶的风险很小。我儿子的一位医生签署了一封信,授权他喝骆驼奶。然后我安排从以色列接收了几瓶生的冷冻骆驼奶。骆驼奶在冷冻前进行了细菌检测,储存在- 20°C,然后空运给我

On the morning after my son ingested camel milk, he demonstrated astonishing improvements in behavior including eye contact, communication, emotional expression (“I really love you; you're awesome; you do so much for me”), and self-organization. He ate breakfast more neatly, noted his schedule, put on his shoes, and got his backpack for school while conversing at the same time.

在我儿子喝下骆驼奶的第二天早上,他的行为表现出了惊人的改善,包括眼神交流、交流、情感表达(“我真的爱你;你太棒了;你为我做了这么多”),以及自我组织。他把早餐吃得更干净利落了,记下了自己的日程安排,穿上鞋子,背起书包去上学,同时还在说话。

He continued consuming 4 oz of camel milk daily with rapid continued improvement in behavior and motor planning. For example, he started looking both ways when crossing streets and parking lots. His erratic behavior stopped, and my frequent offerings of extra protein, which had only somewhat mitigated the problem, were no longer needed. Within 3 weeks, there was also a marked improvement and smoothing of his skin condition. Increasing the daily amount of camel milk to 8 oz seemed to cause new facial grimaces and jerking in one arm, which disappeared when his intake returned to 4 oz. His pragmatic language and vocabulary skills were improved, and other academic skills tested above average and exceptional in some areas.

他每天继续喝4盎司的骆驼奶,行为和运动计划都得到了快速的持续改善。例如,他在过马路和停车场时开始左顾右盼。他的古怪行为停止了,我经常提供额外的蛋白质,这只在一定程度上缓解了问题,不再需要了。在3周内,他的皮肤状况也有了明显的改善和平滑。每天增加到8盎司的骆驼奶似乎会导致新的面部表情和一只手臂的抽搐,但当他的摄入量回到4盎司时,这些症状就消失了。

Interruption of camel milk consumption on several occasions resulted in behavioral and physiological lapses. Just before he turned 12, while I was away from home for two and a half weeks, he did not take camel milk. His school behavior deteriorated to the point that he was in danger of being moved to a special education classroom. Within 24 hours of resuming the camel milk intake, he returned to prior functioning levels. From age 12 to 16 years (present age), he continued on variable amounts of camel milk from Israel and later from the United States, along with conventional medications.

有几次中断食用骆驼奶,导致他行为和生理上的疏失。就在他12岁之前,我离开家两个半星期,他没有喝骆驼奶。他在学校的行为恶化到他有被转移到特殊教育教室的危险的地步。在恢复喝骆驼奶的24小时内,他恢复了之前的功能水平。从12岁到16岁(现在的年龄),他继续饮用来自以色列和美国的不同数量的骆驼奶,以及传统的药物

Camel milk has offered observable and sustained benefits to my son's health and functioning. Along with medications and dietary management, I believe camel milk has contributed to the successful management of his symptoms. My son views camel milk positively and is reassured to know he can always access it.

骆驼奶对我儿子的健康和机能有显著而持久的益处。除了药物治疗和饮食管理,我相信骆驼奶对成功地控制他的症状也有贡献。我的儿子对骆驼奶持肯定的态度,他知道自己随时都能喝到骆驼奶,这让他感到安心。

A MOTHER'S PERSPECTIVE

一个母亲的观点

Children with ASD present multiple lifelong challenges. For such a catastrophic and increasingly prevalent disorder, medical treatment and care is debatable, confusing, and expensive. My son's immune and behavioral responses often correlated to dietary matters. Camel milk, a natural food suitable for premature infants, intrigued me as possibly having inherent value as a health and food substance. Camel milk as a trial treatment seemed less invasive and costly than specialist care, medications, alternative treatments, and behavioral interventions.

ASD患儿存在多种终身挑战。对于这样一种灾难性的、日益普遍的疾病,医疗和护理是有争议的、令人困惑的和昂贵的。我儿子的免疫和行为反应通常与饮食有关。骆驼奶是一种适合早产儿食用的天然食品,它作为一种健康食品的内在价值引起了我的兴趣。与专家护理、药物治疗、替代治疗和行为干预相比,骆驼奶作为一种试验治疗似乎侵入性更小,成本更低。

Just as importantly, camel milk's history gave me assurance. Camel milk has been used for centuries as a medicine in Middle Eastern, Asian, and African cultures. Nomadic cultures have reported living off camel milk exclusively with no apparent loss of health. The United Nations lauded camel milk's nutritional content in 2006.1

同样重要的是,骆驼奶的历史给了我信心。在中东、亚洲和非洲的文化中,骆驼奶作为一种药物已经使用了几个世纪。游牧文化已经报道过完全依靠骆驼奶生活,没有明显的健康损失。联合国在2006年1月年称赞了骆驼奶的营养成分

Although anecdotal information on camel milk exists for a variety of illnesses, documented data related to autism are scarce. Jodie Dashore, a board-certified doctor of occupational therapy in private practice in the United States, has begun documenting behavioral outcomes of ASD children with cormorbidities who are ingesting raw camel milk from the United States.

Global attention on the assessment, causes, and treatment of ASD continues to provide parents of autistic children with hope.

虽然关于骆驼奶的轶事信息存在于各种疾病中,但与自闭症相关的文献资料却很少。Jodie Dashore是美国私人执业的职业治疗专业认证医生,她已经开始记录患有自闭症谱系障碍的儿童从美国摄取生骆驼奶后的行为结果。

全球对ASD的评估、病因和治疗的关注继续为自闭症儿童的父母带来希望

My message to parents and physicians would be as follows:

•Intuition of parents and/or patients is critical to pursuing connections between symptoms and potential treatments.

•Communicate all symptoms, even those that seem minute or insignificant, to healthcare providers.

•Affected parents and patients often know when a behavior or symptom is unusual or suspicious.

•Conduct “due diligence” on all therapies, work in partnership with credentialed health providers to assess and ensure safety of new therapies, and always introduce new therapies methodically.

•Document the course of treatment and data from life events with dates and times.

•Camel milk is an available food product with potential therapeutic value. It tastes “just like milk” and can be flavored to preference.

我给家长和医生的信息如下:

•对父母和/或患者的直觉是寻求症状和潜在治疗之间联系的关键。

•向医疗服务人员传达所有症状,即使是那些看起来微不足道的症状。

•受影响的父母和患者通常知道什么行为或症状是不寻常的或可疑的。

•对所有治疗方法进行“尽职调查”,与有资质的医疗服务提供者合作,评估并确保新疗法的安全性,并始终有条不紊地引入新疗法。

•记录治疗过程和生活事件的数据,并注明日期和时间。

•骆驼奶是一种有潜在治疗价值的可用食品。它尝起来“就像牛奶”,可以根据个人喜好调味

Acknowledgments

The author would like to acknowledge Amnon Gonenne, PhD, who served as her scientific consultant over the years while generously sharing his advanced knowledge of human immune function and camel milk. The author also acknowledges Jodie Dashore, OTD, MS, OTR/L, for reviewing the author's son's test results and sharing her data on recent camel milk usage by children with autism spectrum disorder.

致谢

作者想要感谢Amnon Gonenne博士,她多年来一直担任她的科学顾问,并慷慨地分享了他在人类免疫功能和骆驼奶方面的先进知识。作者还感谢Jodie Dashore, OTD, MS, OTR/L,感谢她审阅了作者儿子的测试结果,并分享了她关于最近患有自闭症谱系障碍的儿童使用骆驼奶的数据。


皇家骆驼


你好,孩子被诊断为自闭症,伴有发育落后,应该要进行系统的敢于和提高了,打针肯定是有副作用的。这个你需要提前和医生沟通清楚。

很多的家长望子成龙,在孩子被诊断后,想尽了很多方法让孩子“康复”,我见过的各种各样的方法,断食疗法,针灸疗法等层出不穷,也许一些方法可能会对孩子的行为和情绪问题产生短时间的帮助,但是从长远的效应来看,是很不利于孩子的发展的。因为针对自闭症的核心障碍,社交和行为,这是需要长时间的干预提高才能够有作用的。

建议给孩子选择合适的机构干预,现在的机构比比皆是,但是最好能够有选择一些正规的机构,有相关的资助,有专业的老师和较好的环境,另外离家还不能太远。有的残联的定点单位也可以选择。还可以帮家长减轻一部分康复费用。

在对孩子进行干预的时候吗,要注意方法,家长可以系统的学习行为干预方法,可以用在孩子的日常训练中,利用分解,强化和辅助训练的方法对孩子进行每一个阶段的提高。比如当你发出指令的时候,观察孩子的反应,如果孩子没有反应或者是反应较慢,那么就要重复你的指令;如果孩子仍然没有反应,那就要对孩子进行辅助训练了。一旦孩子给出正确的行为,可以给孩子精神上的强化。其实很简单,但是过程需要家长自己去摸索出适合孩子的技巧。

我一直觉得家长才是孩子干预的动力,而机构的干预只是外力的作用!


SUM电影


自闭症到现在为止都没有找到发病的诱因,那么何来的药呢?

自闭症历经这么些年,唯一被证实有用的是干预。

其实自闭症的书籍并不多,家长要及时看起来,网络上家长组建的群也很多,大家抱团取暖相互学习,一个个都成了干预的专家。你可以寻找一下队伍,强大自己。

当你慢慢走进自闭症,你就会知道打针、输液、针灸和所谓的生物疗法治疗自闭症是多么不靠谱的一件事了。

家长强大了,孩子进步快不说,还免受很多冤枉罪。

家长好好学习,孩子天天向上,加油吧!


子宁


那针水里什么都没有哦 打了肯定没副作用 别听他们瞎忽悠 老老实实找机构干预


大胜781212


脑营养针好多地方不给打的,因为药效有争议。

而且营养针主要针对脑瘫儿童,1周岁以内最有效。超过一周岁,打了也没用。


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