小孩快4歲,醫生診斷為自閉症,發育落後,要打半年營養針促進腦發育。營養針有副作用嗎?

海喱山


自閉症屬於孤獨譜系障礙疾病,是兒童大腦神經先天發育缺陷所致,伴有社會功能下降,智能發育的落後,治療主要以康復性治療為主,營養針劑對自閉症的緩解及治療沒有明確的醫學證據。



自閉症的常見表現

如果患兒有自閉症,一般在出生後的5、6個月時會發現他們與母親或家人缺乏親密感,哺乳期嬰兒與媽媽缺少依戀的關係,換句話說孩子除了家人之外其他陌生人在抱患兒時,患兒也少有明顯的恐懼、哭鬧錶現。到1週歲後正常兒童可以簡單叫爸爸、媽媽,或者能用手勢或眼神簡單表達自己的意願,而自閉症患兒在言語表達方面有障礙,不會用語言表達自己的意願,對簡單的代詞無法識別含義,例如無法分清你、我、他等;患兒有語言障礙的同時也帶給他們社交方面的問題,患兒因缺乏溝通而只能自娛自樂,逐漸變得行為刻板,缺乏想象力;自閉症的患兒在幼兒園不願意參加團體活動,不能融入到與其他小朋友的遊戲之中,難於看管。除此之外,家人會發現患兒在玩玩具時只是簡單的擺弄,不太喜歡想象,平時喜歡關注旋轉的物體等。



自閉症患兒很多因大腦功能缺陷而在後天出現精神病性症狀,如幻覺或妄想表現,必要時我們建議患兒服用抗精神病藥物控制精神症狀,但患兒的語言交流障礙、刻板行為以及興趣範圍的狹窄還是需要在專業的康復機構通過康復訓練加以糾正,由於先天功能受損,大腦功能遭受不可逆損傷,營養針可能會營養腦神經,但不會改變已形成的缺陷,自閉症患兒需要後天康復治療恢復功能,但恢復程度因人而異,不建議注射營養針治療自閉症。


精神知多少


首先要強調無論是自閉症,還是其他疾病營養針都不需要打!!!

在門診遇到很多來各地前來就診的寶寶,這些寶寶大都是因為自閉症、腦癱、發育落後、早產兒、肌張力等的問題,也有一些誤診為以上問題的寶寶,而這些寶寶幾乎都接受過注射或是口服營養類等藥物的過度治療。

目前很多地方會給寶寶使用一些,營養神經的藥物,如鼠神經生長因子、神經節苷酯、腦蛋白水解物等等,這些藥物其實在國外很早就禁止使用了,協和醫院也不用這些藥,因為其無法穿透血腦屏障,也就說根本無法到達腦子裡的,是不能營養神經的。

這些藥物本質屬於無功無過的藥物,也不會有什麼副作用,但對於已知的發育遲緩、腦癱是起不到治療作用的,甚至是會延誤孩子的病情的,從而延誤最佳的治療時間,所以不建議用,確實很多地方仍然在用,其實是勞民傷財。

自閉症、腦癱、發育落後、早產兒、肌張力等疾病的問題。唯一的治療方式就是進行要及時有效對應的康復治療,如大運動、精細動作、社會交往、心理治療等等。且需要跟蹤治療,也就是說根據寶寶每次康復的情況,再製定下一次的康復計劃。直到寶寶最大程度的恢復和正常寶寶一樣。

自閉症是一種社會交往障礙的疾病,一般6月齡時會有自閉傾向,越早干預預後越好,寶寶現在快4歲了,干預已經算很晚了,所以預後會差一點,但是家長也要積極的配合醫生的康復治療,以及家庭引導,訓練寶寶的獨立和自理生活能力,有些自閉症孩子會過分依賴自己的父母,情感上和生活上的注意力都在父母身上。父母應該跟孩子悉心跟他們溝通。這樣慢慢建立他們的認知和獨立能力,盡最大程度不影響寶寶以後的生活和學習。

自閉症、腦癱、發育落後、早產兒、肌張力等的問題,由於診斷困難,所以很容易被誤診,如果家長條件允許可以到協和醫院找我面診,避免誤診和過度治療。一般我會在週五的下午在協和出診,但是家長普遍反映掛不到號,為了節省財力、人力,建議直接到北京寶秀蘭兒優中心,(我一般會在週二、週四、週六上午出診,打400-0066-650諮詢掛號即可),如遇不便也可先諮詢進行視頻看診,明確問題後再考慮是否需要來面診。有以上問題的寶寶,家長應引起重視。


兒科醫生鮑秀蘭


首先要明確自閉症和發育遲緩的關係,兩者並不是兩種不同的疾病。我們常說的發育遲緩是一個大類,泛指孩子在某一個或者多個領域明顯偏離了正常的發育規矩,明顯落後於同齡孩子的平均發育成長水平。比如有的孩子過於矮小瘦弱,有的孩子語言能力很弱,有的孩子大運動能力很差,有的孩子社交能力明顯較弱等等,這些都是發育遲緩。而每一種發育遲緩的原因可能有一種或者多種,而自閉症是常見的社交能力發育遲緩,腦神經發育遲緩的原因,當然,有些孩子語言和智力發育遲緩也是因為自閉症。

其次,自閉症的確是因為腦神經發育遲緩,但這種發育遲緩往往並不是因為營養的缺失,雖然外界的營養攝入可以為腦神經的發育提供必要的條件,但依靠這種攝入要從根本上解決自閉症,目前還沒有這樣的論調。

有一些ASD的孩子會存在明顯的挑食問題,醫生在診斷自閉症的時候可能會根據孩子是否存在挑食給予一些促進食慾,促進消化吸收的藥物,也可能會給予一些提高孩子智力的藥劑,但這些都只是輔助的手段,其根部不是直接作用於ASD的治療,而是為了促進孩子的正常生長髮育,是否接受這樣的藥物輔助治療,我覺得家長需要從孩子的實際情況出發,理性的選擇,如果孩子平時的飲食正常,也不明顯挑食,身體的發育軌跡也正常,那麼我是覺得完全沒有必要選擇這類的營養針,針劑提供的營養物質完全可以通過日常合理的飲食攝入滿足。而任何藥劑,哪怕只是增加營養的,終究比不上天然的通過飲食攝入的方式來得安全,自然。

當然,如果孩子存在明顯的挑食問題,本身就存在營養不良的情況,那麼也是可以考慮接受輔助治療的。不過作為家長還是要多想想辦法,讓孩子多吃,吃好。


愛陪娃的熊叔


這是哪裡的醫生!?

千萬不要相信這樣的鬼話。如果接受這樣的治療,你浪費的不僅僅是金錢,更是孩子康復的最佳時間!

如果真的是自閉症,所謂的營養針沒有任何幫助作用。

目前沒有任何人瞭解自閉症的形成原因。雖然大家一致認為自閉症是先天的,和後天帶養無關,但是沒有任何數據可以證明是先天原因。

病因都不瞭解,怎麼對症下藥?

自閉症的特徵網絡都可以查到,大概是這幾個特徵:動作刻板重複、缺乏目光對視、語言能力弱、沒有社交行為、對外界刺激沒反應等等。

目前唯一確定有效的治療自閉症兒童的手段,就是強化訓練,康復治療。

建議家長多研究瞭解自閉症,尋求真正的專業機構指導自己怎麼訓練孩子,千萬不要走彎路。

快四歲的孩子,加強訓練,只要方法得當,康復效果應該不會太差。

孩子大了,康復效果會越來越弱。

加油(ง •̀_•́)ง


媽咪老師


這個打營養針促進腦發育還是第一次聽說,自閉症是前天發育性的問題,後天只能通過輔助康復治療,至於打什麼真促進腦發育,似乎跟自閉症的康復治療沒有什麼作用。

社會上對自閉症有一些偏見的理論

  • 偏見一、自閉症會傳染——自閉症是一種先天性的腦神經發育障礙,從而導致患兒具有功能性的發展障礙,比如語言交流障礙,社會交往障礙,但這些症狀是不會傳染的

  • 偏見二、某一領域具有超長的天賦——受影視劇以及媒體的影響,很多人以為自閉症的孩子會在某一方面有超常的能力,比如記憶、繪畫、音樂等。事實上,美國疾病防控中心在2009年的調查顯示,41%的自閉症兒童在治理方面有缺陷,智商在70分以下。59%的兒童邊緣智商71-85分或高智商85分以上,但很少有天才能力。
  • 偏見三、冰箱媽媽理論——有人認為家長的養育方式,主要是媽媽對孩子的冷淡,才導致孩子患有自閉症,所以把他們的媽媽稱為冰箱媽媽。實際上教育方法不會導致自閉症,只會改變行為。
  • 偏見四、他們沒有感情不願說話——因為我們平時見到的自閉兒大多面無表情,不理不睬,就認為他們沒有感情。實際上每個自閉兒都不一樣,病情較重的孩子與他們建立友誼是一件困難的事情,但絕大多數自閉兒都可以刻其他人建立很好的感情

孩子已經4歲診斷為自閉症,那麼要有計劃的安排孩子的康復訓練了,爭取在孩子最好的時間段,給予有針對性的訓練,讓孩子得到更多的學習,有利於今後的學習和生活。


泡泡育樂園


Patient Report: Autism Spectrum Disorder Treated With Camel Milk

Christina M. Adams, MFAcorresponding author

克里斯蒂娜·M·亞當斯,MFA通訊作家

Abstract

This patient report is about my son, who was diagnosed with autism spectrum disorder (ASD) at 3 years of age, and the effects I observed when he began drinking camel milk daily. Beginning at age 9, he drank one half cup of raw camel milk a day and experienced overnight an improvement in his symptoms. His continued regular consumption of camel milk was associated with sustained symptom improvements for 6 consecutive years (2007-2013). This patient report is a road map of my navigations, consultations with experts and autism care providers, and the apparent effect of camel milk on autism spectrum disorder (ASD).

Key Words: Camel milk, autism spectrum disorder, patient report

摘要

這份病人報告是關於我的兒子的,他在3歲時被診斷為自閉症譜系障礙(ASD),以及我觀察到的他開始每天喝駱駝奶的影響。從9歲開始,他每天喝半杯生駱駝奶,一夜之間症狀有所改善。他連續6年(2007-2013)持續飲用駱駝奶與症狀改善相關。這份病人報告是我的導航圖,是我與專家和自閉症護理提供者的諮詢,以及駱駝奶對自閉症譜系障礙(ASD)的明顯影響。

關鍵詞:駱駝奶,自閉症譜系障礙,患者報告

INTRODUCTION

As an infant, my son appeared normal and met the generally accepted growth and development milestones. He was calm and attentive, smiled at 6 weeks, laughed, and could focus on books and toys. He was affectionate and bonded with his parents and always showed appropriate separation anxiety. He spoke two clear words at 9 months and walked on his first birthday. However, beginning at 6 months, he started biting people and never pointed to objects. He also had very red cheeks, constipation, prolonged startle reflex, and infant torticollis.

介紹

我的兒子嬰兒期間看起來很正常,符合人們普遍接受的生長髮育階段。他平靜而專注,在6周時微笑,大笑,可以專注於書本和玩具。他和父母感情深厚,關係密切,表現出適當的分離焦慮。九個月大的時候,他就能清晰地說出兩個字,一歲生日的時候,他還能走路。然而,從6個月大開始,他就開始咬人,而且從不指向物體。他也有非常紅的臉頰,便秘,長期驚嚇反射,嬰兒斜頸。

EARLY AUTISM

Just before he turned 3 years old, my son was diagnosed with autism. He had loss of language and attention at 15 to 18 months, the appearance of hyperactivity, sensitivity to noise, and fixation on objects and water. He had difficulty interacting with others, was still biting and engaging in aggressive behavior, and had been dismissed from two preschools. Like many ASD children, he was found to have food intolerances and allergies, skin conditions, auditory processing delay, expressive/receptive language delay, constipation, and an intermittent tic disorder.

早期自閉症

就在我兒子3歲之前,他被診斷出患有自閉症。他在15到18個月的時候失去了語言能力和注意力,表現為極度活躍,對噪音敏感,對物體和水很執著。他很難與他人交流,仍然愛咬人,並有攻擊性行為,曾被兩所幼兒園開除。和許多自閉症兒童一樣,他被發現有食物不耐受和過敏、皮膚狀況、聽覺處理延遲、表達/接受語言延遲、便秘和間歇性抽動障礙。

After the diagnosis and continuing for years, he received a battery of tests including complete physical exams, electroencephalograms, neurological and sensory evaluations, auditory testing, and stool and urine testing for heavy metals, amino acids, organic acids, intestinal parasites, and Candida. Laboratory tests were ordered, including complete blood counts, metabolic profiles, and tests for immune-globulins and inflammatory markers. He also received regular vaccination through 15 months.

在確診並持續數年之後,他接受了一系列測試,包括完整的體檢、腦電圖、神經和感覺評估、聽覺測試,以及糞便和尿液中重金屬、氨基酸、有機酸、腸道寄生蟲和念珠菌的測試。要求進行實驗室檢測,包括全血計數、代謝情況、免疫球蛋白和炎症標誌物檢測。他還接受了15個月的定期疫苗接種。

My son was enrolled in 35 to 40 hours per week of intensive one-on-one therapy at our home in a clinically supervised program of applied behavioral analysis (ABA). He also had 3 hours per week of individual speech therapy and 2 hours per week of occupational therapy. His diet was gluten- and casein-free for 2 years with limited intake of sugar, yeast, and nuts. His medications included various antiviral (famciclovir, valaciclovir) and antifungal medications (nystatin, ketoconazole, amphotericin-B), selective serotonin reuptake inhibitors (SSRIs; citalopram, escitalopram) and blood pressure–reducing medication (guanfacine) to decrease hyperactivity and aggression. These medications, used daily and mostly added one at a time for careful observation, seemed to be beneficial. The combination of his treatments produced positive benefits that were confirmed in twice-monthly ABA clinic meetings, daily ABA data gathering, and pediatric ASD specialist office visits. As many children make limited gains with similar treatments, this progress earned my son a reputation as a “responder” in autism parlance.

我的兒子參加了一個應用行為分析(ABA)的臨床監督項目,每週在家接受35到40個小時的強化一對一治療。他每週還有3小時的個別語言治療和2小時的職業治療。他的飲食中有兩年不含麩質和酪蛋白,糖、酵母和堅果的攝入量有限。他的藥物包括各種抗病毒藥物(泛昔洛韋,伐昔洛韋)和抗真菌藥物(尼司他汀,酮康唑,兩性黴素b),選擇性血清素再吸收抑制劑(SSRIs;西酞普蘭,艾司西酞普蘭)和降壓藥(胍法辛)來減少多動症和攻擊性。這些藥物,每天使用,大多一次增加一個仔細觀察,似乎是有益的。他的治療組合產生了積極的益處,這在每月兩次的ABA臨床會議、每天ABA數據收集和兒科ASD專家辦公室訪問中得到了證實。由於許多孩子通過類似的治療只能獲得有限的效果,這一進步為我的兒子贏得了孤獨症術語中“反應者”的名聲。

By age 5, this hard-working child had demonstrated significant improvement, passed the kindergarten readiness test, and began attending a public school with a shadow aide. ABA therapy dropped to 3 hours per week. He later attended a school for children with attention deficit/hyperactivity disorder with weekly social skill sessions and participated in lessons and activities outside our home with and without an aide. His schoolwork was at or above grade level with the anticipated exception of handwriting. Although he needed intermittent supervision to stay on task, his cognitive scores were all above average. He continued to struggle with prolonged eye contact, and his conversations, while inquisitive and mutually engaging, were sometimes inattentive and monologue-style. Nevertheless, he was bright and friendly and enjoyed social contact and outings with peers and friends. Interestingly, when he ate dairy products around age 7, even pizza with the cheese removed at a baseball game, he would develop many symptoms. Hand-flapping, circle and toe walking, inattention, and constipation would result within hours, and he once complained, “It feels like there's dirt in my brain.” Though he had returned to gluten 2 years after his ASD diagnosis with no outward effects, he avoided dairy products and kept his sugar intake low.

到5歲的時候,這個勤奮的孩子表現出了顯著的進步,通過了幼兒園預備考試,並開始在一個影子助手的幫助下進入公立學校。ABA療法減少到每週3小時。後來,他參加了一所針對注意力缺陷/多動障礙兒童的學校,參加了每週一次的社交技能課程,並在有或沒有助手的情況下參加課外課程和活動。他的學業成績在年級或以上,除了預料中的書法以外。雖然他需要間歇性的監督才能完成任務,但他的認知成績都高於平均水平。他繼續與長時間的目光接觸作鬥爭,他的談話雖然好奇而又相互吸引,但有時是漫不經心的、獨白式的。儘管如此,他還是很開朗、友好,喜歡與同齡人和朋友進行社交和郊遊。有趣的是,當他在7歲左右吃乳製品時,即使是在棒球比賽中去掉奶酪的披薩,他也會出現許多症狀。拍手、繞圈、用腳趾走路、注意力不集中,幾小時內就會便秘。雖然他在被診斷為自閉症譜系障礙兩年後又開始食用麩質,但他沒有食用奶製品,也沒有攝入過多的糖。

Editors' Remarks

In this patient report, a mother shares her observations and assessment of the effectiveness and safety of camel's milk for her autistic son. We believe this patient report helps to communicate her experience of the care her family received. It will also inform clinicians about how patients experience the care they provide. We support reporting the patient's perspective.

在這份病人報告中,一位母親分享了她對駱駝奶對她患有自閉症的兒子的有效性和安全性的觀察和評估。我們相信這個病人的報告有助於傳達她的經驗,她的家人得到的照顧。它也將告知臨床醫生病人如何體驗他們所提供的護理。我們支持報告病人的觀點。

Despite this remarkable progress, at age 9, my son began to have significant behavioral issues: sudden hyperactivity, loss of attention, distracted language, and loss of self-regulation. These symptoms were exacerbated when he had not eaten for 2 to 3 hours. Visits to his treating ASD physicians, titration of existing medications, and additional dietary measures did not seem to help. A trial of SSRI (fluoxetine) made him dazed and anxious and seemed to worsen the behavioral issues. It was becoming difficult to prompt and cope with his actions as discipline and safety techniques were no longer effective. As his mother, I was increasingly taxed and my outlook was becoming ominous.

儘管有了這些顯著的進步,在9歲的時候,我的兒子開始出現嚴重的行為問題:突然的多動症、注意力不集中、語言不集中、自我調節能力下降。當他2到3小時沒有進食時,這些症狀會加重。他去看治療自閉症譜系障礙的醫生,對現有藥物進行滴定,並採取額外的飲食措施,似乎都沒有效果。一次SSRI(氟西汀)的試驗使他頭昏眼花,焦慮不安,似乎使行為問題惡化。由於紀律和安全措施不再有效,他的行動越來越難以及時處理。作為他的母親,我的稅負越來越重,我的前景也變得不妙。

TREATMENT WITH CAMEL MILK

On October 10, 2007, 2 weeks before my son's tenth birthday, he drank his first half cup (4 oz) of thawed raw unheated camel milk. I chose this course because I had spent the previous 2 years studying camel milk and consulting people familiar with its use. In fall 2005, a camel farmer spoke to me about the use of camel milk in Middle Eastern hospitals for premature babies due to its reputed nonallergenic and nutrient-rich qualities. That information led me to theorize the milk might strengthen my son's immune system and thus improve his functioning and also serve as an alternative dairy product. I reviewed the scant literature that evening and over the next few months. In 2006, I found Dr Reuven Yagil's brief 2005 report on several children with ASD responding positively to camel milk. I then consulted Israeli-American scientist Amnon Gonenne, PhD, on his theory that camel milk may act as an anti-inflammatory agent and might help my son. Reassured by anecdotal reports and conversations with healthcare providers and camel milk producers, I concluded the risk of trying camel milk was minimal. One of my son's physicians signed a letter authorizing his need to consume camel milk. I then arranged to receive bottles of raw frozen camel milk from Israel. The camel milk was tested for the presence of bacteria prior to freezing, stored at −20° C, and then shipped by air to me.

2007年10月10日,就在我兒子十歲生日的前兩週,他第一次喝下了半杯(4盎司)解凍但未加熱的生駱駝奶。我選擇了這個治療,因為我在過去的兩年裡一直在研究駱駝奶,並諮詢熟悉它用途的人。2005年秋天,一位養駱駝的農民告訴我,中東地區的醫院使用駱駝奶餵養早產兒,因為駱駝奶被認為不會引起過敏,而且營養豐富。這些信息讓我想到,這種牛奶可能會增強我兒子的免疫系統,從而改善他的功能,還可以作為一種替代奶製品。那天晚上和以後的幾個月裡,我查閱了一些零星的文獻。2006年,我發現Reuven Yagil博士2005年關於幾個ASD患兒對駱駝奶有積極反應的簡短報告。然後我諮詢了以色列-美國科學家Amnon Gonenne博士,他的理論是駱駝奶可能有消炎的作用,可能對我兒子有幫助。我從坊間傳聞以及與醫療服務提供商和駱駝奶生產商的對話中得到了安慰,我得出結論:喝駱駝奶的風險很小。我兒子的一位醫生簽署了一封信,授權他喝駱駝奶。然後我安排從以色列接收了幾瓶生的冷凍駱駝奶。駱駝奶在冷凍前進行了細菌檢測,儲存在- 20°C,然後空運給我

On the morning after my son ingested camel milk, he demonstrated astonishing improvements in behavior including eye contact, communication, emotional expression (“I really love you; you're awesome; you do so much for me”), and self-organization. He ate breakfast more neatly, noted his schedule, put on his shoes, and got his backpack for school while conversing at the same time.

在我兒子喝下駱駝奶的第二天早上,他的行為表現出了驚人的改善,包括眼神交流、交流、情感表達(“我真的愛你;你太棒了;你為我做了這麼多”),以及自我組織。他把早餐吃得更乾淨利落了,記下了自己的日程安排,穿上鞋子,背起書包去上學,同時還在說話。

He continued consuming 4 oz of camel milk daily with rapid continued improvement in behavior and motor planning. For example, he started looking both ways when crossing streets and parking lots. His erratic behavior stopped, and my frequent offerings of extra protein, which had only somewhat mitigated the problem, were no longer needed. Within 3 weeks, there was also a marked improvement and smoothing of his skin condition. Increasing the daily amount of camel milk to 8 oz seemed to cause new facial grimaces and jerking in one arm, which disappeared when his intake returned to 4 oz. His pragmatic language and vocabulary skills were improved, and other academic skills tested above average and exceptional in some areas.

他每天繼續喝4盎司的駱駝奶,行為和運動計劃都得到了快速的持續改善。例如,他在過馬路和停車場時開始左顧右盼。他的古怪行為停止了,我經常提供額外的蛋白質,這隻在一定程度上緩解了問題,不再需要了。在3周內,他的皮膚狀況也有了明顯的改善和平滑。每天增加到8盎司的駱駝奶似乎會導致新的面部表情和一隻手臂的抽搐,但當他的攝入量回到4盎司時,這些症狀就消失了。

Interruption of camel milk consumption on several occasions resulted in behavioral and physiological lapses. Just before he turned 12, while I was away from home for two and a half weeks, he did not take camel milk. His school behavior deteriorated to the point that he was in danger of being moved to a special education classroom. Within 24 hours of resuming the camel milk intake, he returned to prior functioning levels. From age 12 to 16 years (present age), he continued on variable amounts of camel milk from Israel and later from the United States, along with conventional medications.

有幾次中斷食用駱駝奶,導致他行為和生理上的疏失。就在他12歲之前,我離開家兩個半星期,他沒有喝駱駝奶。他在學校的行為惡化到他有被轉移到特殊教育教室的危險的地步。在恢復喝駱駝奶的24小時內,他恢復了之前的功能水平。從12歲到16歲(現在的年齡),他繼續飲用來自以色列和美國的不同數量的駱駝奶,以及傳統的藥物

Camel milk has offered observable and sustained benefits to my son's health and functioning. Along with medications and dietary management, I believe camel milk has contributed to the successful management of his symptoms. My son views camel milk positively and is reassured to know he can always access it.

駱駝奶對我兒子的健康和機能有顯著而持久的益處。除了藥物治療和飲食管理,我相信駱駝奶對成功地控制他的症狀也有貢獻。我的兒子對駱駝奶持肯定的態度,他知道自己隨時都能喝到駱駝奶,這讓他感到安心。

A MOTHER'S PERSPECTIVE

一個母親的觀點

Children with ASD present multiple lifelong challenges. For such a catastrophic and increasingly prevalent disorder, medical treatment and care is debatable, confusing, and expensive. My son's immune and behavioral responses often correlated to dietary matters. Camel milk, a natural food suitable for premature infants, intrigued me as possibly having inherent value as a health and food substance. Camel milk as a trial treatment seemed less invasive and costly than specialist care, medications, alternative treatments, and behavioral interventions.

ASD患兒存在多種終身挑戰。對於這樣一種災難性的、日益普遍的疾病,醫療和護理是有爭議的、令人困惑的和昂貴的。我兒子的免疫和行為反應通常與飲食有關。駱駝奶是一種適合早產兒食用的天然食品,它作為一種健康食品的內在價值引起了我的興趣。與專家護理、藥物治療、替代治療和行為干預相比,駱駝奶作為一種試驗治療似乎侵入性更小,成本更低。

Just as importantly, camel milk's history gave me assurance. Camel milk has been used for centuries as a medicine in Middle Eastern, Asian, and African cultures. Nomadic cultures have reported living off camel milk exclusively with no apparent loss of health. The United Nations lauded camel milk's nutritional content in 2006.1

同樣重要的是,駱駝奶的歷史給了我信心。在中東、亞洲和非洲的文化中,駱駝奶作為一種藥物已經使用了幾個世紀。遊牧文化已經報道過完全依靠駱駝奶生活,沒有明顯的健康損失。聯合國在2006年1月年稱讚了駱駝奶的營養成分

Although anecdotal information on camel milk exists for a variety of illnesses, documented data related to autism are scarce. Jodie Dashore, a board-certified doctor of occupational therapy in private practice in the United States, has begun documenting behavioral outcomes of ASD children with cormorbidities who are ingesting raw camel milk from the United States.

Global attention on the assessment, causes, and treatment of ASD continues to provide parents of autistic children with hope.

雖然關於駱駝奶的軼事信息存在於各種疾病中,但與自閉症相關的文獻資料卻很少。Jodie Dashore是美國私人執業的職業治療專業認證醫生,她已經開始記錄患有自閉症譜系障礙的兒童從美國攝取生駱駝奶後的行為結果。

全球對ASD的評估、病因和治療的關注繼續為自閉症兒童的父母帶來希望

My message to parents and physicians would be as follows:

•Intuition of parents and/or patients is critical to pursuing connections between symptoms and potential treatments.

•Communicate all symptoms, even those that seem minute or insignificant, to healthcare providers.

•Affected parents and patients often know when a behavior or symptom is unusual or suspicious.

•Conduct “due diligence” on all therapies, work in partnership with credentialed health providers to assess and ensure safety of new therapies, and always introduce new therapies methodically.

•Document the course of treatment and data from life events with dates and times.

•Camel milk is an available food product with potential therapeutic value. It tastes “just like milk” and can be flavored to preference.

我給家長和醫生的信息如下:

•對父母和/或患者的直覺是尋求症狀和潛在治療之間聯繫的關鍵。

•向醫療服務人員傳達所有症狀,即使是那些看起來微不足道的症狀。

•受影響的父母和患者通常知道什麼行為或症狀是不尋常的或可疑的。

•對所有治療方法進行“盡職調查”,與有資質的醫療服務提供者合作,評估並確保新療法的安全性,並始終有條不紊地引入新療法。

•記錄治療過程和生活事件的數據,並註明日期和時間。

•駱駝奶是一種有潛在治療價值的可用食品。它嚐起來“就像牛奶”,可以根據個人喜好調味

Acknowledgments

The author would like to acknowledge Amnon Gonenne, PhD, who served as her scientific consultant over the years while generously sharing his advanced knowledge of human immune function and camel milk. The author also acknowledges Jodie Dashore, OTD, MS, OTR/L, for reviewing the author's son's test results and sharing her data on recent camel milk usage by children with autism spectrum disorder.

致謝

作者想要感謝Amnon Gonenne博士,她多年來一直擔任她的科學顧問,並慷慨地分享了他在人類免疫功能和駱駝奶方面的先進知識。作者還感謝Jodie Dashore, OTD, MS, OTR/L,感謝她審閱了作者兒子的測試結果,並分享了她關於最近患有自閉症譜系障礙的兒童使用駱駝奶的數據。


皇家駱駝


你好,孩子被診斷為自閉症,伴有發育落後,應該要進行系統的敢於和提高了,打針肯定是有副作用的。這個你需要提前和醫生溝通清楚。

很多的家長望子成龍,在孩子被診斷後,想盡了很多方法讓孩子“康復”,我見過的各種各樣的方法,斷食療法,針灸療法等層出不窮,也許一些方法可能會對孩子的行為和情緒問題產生短時間的幫助,但是從長遠的效應來看,是很不利於孩子的發展的。因為針對自閉症的核心障礙,社交和行為,這是需要長時間的干預提高才能夠有作用的。

建議給孩子選擇合適的機構干預,現在的機構比比皆是,但是最好能夠有選擇一些正規的機構,有相關的資助,有專業的老師和較好的環境,另外離家還不能太遠。有的殘聯的定點單位也可以選擇。還可以幫家長減輕一部分康復費用。

在對孩子進行干預的時候嗎,要注意方法,家長可以系統的學習行為干預方法,可以用在孩子的日常訓練中,利用分解,強化和輔助訓練的方法對孩子進行每一個階段的提高。比如當你發出指令的時候,觀察孩子的反應,如果孩子沒有反應或者是反應較慢,那麼就要重複你的指令;如果孩子仍然沒有反應,那就要對孩子進行輔助訓練了。一旦孩子給出正確的行為,可以給孩子精神上的強化。其實很簡單,但是過程需要家長自己去摸索出適合孩子的技巧。

我一直覺得家長才是孩子干預的動力,而機構的干預只是外力的作用!


SUM電影


自閉症到現在為止都沒有找到發病的誘因,那麼何來的藥呢?

自閉症歷經這麼些年,唯一被證實有用的是干預。

其實自閉症的書籍並不多,家長要及時看起來,網絡上家長組建的群也很多,大家抱團取暖相互學習,一個個都成了干預的專家。你可以尋找一下隊伍,強大自己。

當你慢慢走進自閉症,你就會知道打針、輸液、針灸和所謂的生物療法治療自閉症是多麼不靠譜的一件事了。

家長強大了,孩子進步快不說,還免受很多冤枉罪。

家長好好學習,孩子天天向上,加油吧!


子寧


那針水裡什麼都沒有哦 打了肯定沒副作用 別聽他們瞎忽悠 老老實實找機構干預


大勝781212


腦營養針好多地方不給打的,因為藥效有爭議。

而且營養針主要針對腦癱兒童,1週歲以內最有效。超過一週歲,打了也沒用。


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